Living with Alzheimers – A New Challenge for 2020 by Chris Suich

 new challenge for 2020 Bob Suich Chris Suich

Welcome to the New Year 2020! Christmas came and went. We had a pleasant enough one without incident. Can’t say that of the new year though.

The first few days of 2020 were a bit of a challenge. I noticed Bob’s ankle was a bit puffy after his bath. I’ll have to keep an eye on that, I thought. Perhaps his sock was too tight around his ankle, but I thought I’d put on his open topped non-elastic ones.

The next day his lower left leg was huge and his foot resembled a block of lard. No understanding or pain noted from Bob.  It was Saturday, no GP available. I went on the NHS website to check and rang 111 just to make sure I wouldn’t be wasting anyone’s time if I took him to the ’Walk in Care’ at the local hospital. I realised it probably was a blood clot as the answers pointed to that. The lady rang me back from the NHS helpline to tell me I’d got an appointment for 8.30pm and to take him in. We were seen by 11.30pm.

It was an endurance test for us both. Bob wanted to go to bed, he’d been saying this every two minutes since 3pm and was getting more and more distressed.

‘Let’s do a runner,’ he whispered conspiratorially. It crossed my mind. Then he’d ask everyone if they were a doctor and that he thought it was ridiculous that there were no doctors there. If someone spoke loudly or a child squealed it upset him.

There was a blood clot. He had a scan to confirm on the following Monday. We had to go in again on the Sunday and Monday for an Injection of blood thinner in his tummy; another endless wait.

Finally, I think the penny dropped that waiting for hours for a two minute injection was stressful for Bob and the waiting audience of patients. I was presented with 10 injections, a safe needle disposal box and told to get on with it. Nurse Suich at your service!

Poor Bob. I was now the baddy, hurting his tummy every night. What fights we had getting that needle in – and how close did I come to getting it in me, not Bob.  A Carry On film comes to mind.

I still feel though the physical side of caring isn’t the hardest part: the hardest part is the loss of freedom, the absolute tie, the relentlessness of the duty, the repetitive nature, the hyper vigilance of constant watching, the fact you can no longer call your life your own.

Living with Alzheimers – The Christmas Market by Chris Suich

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Ho ho ho!
We are going to Beverley Christmas Market today with our friend.
‘Hurray!’ Bob says.
We get picked up at 9 am with our friend and arrive at 10.15am near the race course and park near the common land.
It was a scenic journey and a crisp winter day. Bob enjoyed looking at the landscape and commented that he could see for miles. We took a risk and didn’t take the wheelchair which I’d bought about a month ago for longer walks. Bob has started leaning to one side and the more tired he gets, the more he leans.
We set off walking along the common.

Two minutes later and Bob has had enough.
‘How much longer?’
‘Just a little while longer‘ I answer.
He holds onto my hand like a vice, crushing my fingers.
It is scary when your spacial awareness and depth is compromised.
Constant reassurance and guidance as to where to walk and preparation for getting up and down uneven steps or paths is called for. I’m determined that we walk every day as I know once the movement goes I won’t be able to manage him at home.

It is very crowded, even this early. It is Christmassy and the brass bands are playing Christmas carols which Bob recognises and joins in with, singing the lyrics and choruses he remembers.
‘Jingle Bells, Jingle all the way,’ he sings. Sometimes he just la la’s the tunes, quite loudly. I’m so happy when he remembers something and it brings a big smile to my lips.
We manage a few stalls but Bob finds the crowds difficult and the stalls are very busy. My friend and I take a hand each and we walk together, the three amigos.

I look for benches where Bob can have a rest and see one near the Beverley Brass Band. I get some change and put it their tin and the gentleman moves his music sheets and we sit for a while. My friend and I take it in turns to have a look at the stalls whilst Bob sits happily listening to the music with the person that is left. I can’t leave him to stay on the bench himself because he would get up and walk around looking for me. He went missing once – for 6 hours.

We head back towards the car. Bob spots a stall selling small hearts to hang on the Xmas tree. They are made from felt and embroidered with messages. He picks a white one with red embroidery and wants to get it. He holds it and tells the lady at the stall he has no money.

‘It’s okay, darling. I’ve got my purse and you can buy it,’ I say.
It says ‘I love you’.
That’s the best gift I could have, I think, when he gives it to me. It’s now on our little tree.
Happy Christmas everyone.

Living with Alzheimers – A Typical Day by Chris Suich

chris-bob-suich-living-alzheimers

Bob wakes up at 8am today. His head has moved from his pillow to mine. How did that happen? I always put his head squarely in the middle of his pillow so how does he move to mine? He tries to get as near to me as he can because he needs the warmth and reassurance of my skin on his, even my breath when I breathe. It is a bit claustrophobic but I understand.
‘Are you Gary?’ he asks
‘I hope not,’ I answer
‘I’m Chris. ‘
‘Yes, you’re Chris, my number one’
‘I’m your wife. We’ve been together forty years’
‘I love you.’
This will be the start of 50 ‘I love yous’ throughout the day. Then it’s straight into the routine- helping him out of bed and toileting him, then the bath.

‘I’m not going in there.’
‘You are, but I will help you. I’m making it bubbly and warm ,and you’ve got your magic mat in, so you won’t slip.’
‘I’m not going in there!’
‘But I want to make you look lovely and smart, and make your lovely silver hair shine with my special shampoo.‘
He considers for a moment. ‘How do I get in? I’m going to fall.’
‘No, you’re not, because I’ve got you.’
‘Okay,’ he relents. ‘Just for you.’

I place Bob’s hand in the sink tell him to lift his leg up and guide it into the bath water. I tell him to hold onto the bath handle with his other hand and he cautiously and shakily lifts his other leg in. He won’t sit down though, so the bath is not happening.
‘Sit down , I will help you.’ I hook my arm under his arm pit and guide him downwards.
He sits.

‘I’m all wet now!’
‘Yes, well you are getting washed.’
Then onto  the trauma of the wash and the hair washing. I’m as quick as I can be because Bob wants to get out as soon as he gets in. I guide him out and dry him. He has no idea how to help. His limbs are heavy and leaden. I have to push his arms into the sleeves and lift his legs into jeans and shoes. All clean and fresh.

Next is the pills and shave. I’m knackered already and it’s only 8.45am.
First go with the pills and he spits them out. I pick them up and we have another go. ‘All swigged down.‘

Now the shave. But Bob is having none of it.
‘No, no no,’ he says
‘I’ll be quick. ‘
‘No. I hate it!’
‘Don’t be cross,’  I say and give him a kiss.
He melts. ‘Okay, just for you.’
So I get my way and he has his wet shave. I’m getting better at it, and quicker.

My lovely handsome husband. Aftershave Jo Malone, only the best!

Are you ready for a Tiny Adventure? Tiny Castles by Dixe Wills

tiny-castles-dixe-wills

When I was a child my parents had a copy of the AA Book of the Road. A big beige book covered with a black plastic protective jacket. Oh, what treasures it held. When we went out on journeys the book went with us, and I would sit on the back seat poring over the pages. What wonders there were to be found out and about in the UK. Who knew? Not I. Within its hardback covers lay undiscovered worlds, secret places, forts, rivers, museums … I loved the drawings, the facts and figures, the sense that there was an adventure around every corner.

So I was delighted to discover Tiny Castles by Dixe Wills. It’s an entertaining look at some of the UK’s more modest fortified buildings – from Henry VIII’s beautifully preserved St Mawes Castle in Cornwall to Cubbie Roo’s Castle in Orkney – built by a Norse chieftain – many of these tiny fortresses occupy a unique place in history. In one case at least, the castle is the size of an average semi-detached house.Often the scene of unspeakable violence and treachery, these diminutive strongholds are now, for the most part, peaceful and serene places to explore.

Divided into three sections covering England, Scotland and Wales, Dixe Wills takes us on a tour of 60 of the countries loveliest and quirkiest strongholds. The writing is amusing and accessible, no long drawn-out text to bore the reader, just small and perfectly proportioned descriptions.

And these Tiny Castles are not crumbling ruins, but relatively complete castles with enough features intact to explore and enjoy, from Cromwell Castle (the smallest) to Castell Coch (a fairytale folly built on the remains of a much older castle) to Crichton Castle (fantastic for children).

You’ll find not only the location and grid reference but when to visit, what the admission fee is (if any), public transport and website details. Beautifully presented with lots of great photos … I feel a Tiny Adventure awaits.

Published by AA Media Limited    Hardback  £16.99

 

About the author

Dixe Wills is the author of numerous books about Britain’s lesser-known, quirkier side, including Tiny Islands, Tiny Stations, Tiny Churches and Tiny Campsites and the critically acclaimed but shamefully underbought The Z to Z of Great Britain, published in 2005 and still considered the go-to work on places in Britain that start with the final letter of the alphabet.

Dixe lives in Sussex and is a former member of Hartfield FC, where he played a largely anonymous midfield role alongside his more talented older brother.

 

 

Warm Winter Reads for Saga Lovers

 

Here’s another selection of sagas that might find their way onto your bookcase this winter. Lovely stories with winter settings and a Christmas flavour in each of them.

 

A Precious Gift by Rosie Goodwin

Nuneaton 1911

The latest book in the Days of the Week series – Friday’s Child is Loving and Giving.

Holly Farthing has lived with her widowed mother and overbearing grandfather since she was a small child. When she reaches eighteen her Grandfather tries to marry her off to a widower twice her age. When she refuses he withdraws all support and she flees to London with her maid Ivy, her only friend.

Once there, Holly searches for the father she’s never met and begins nurse training in the local hospital. There she meets the dashing Doctor Parkin and falls in love.  When he proposes, Holly finally feels she will at last find the happiness she craves -until she discovers some shocking news that means they can never be together.

Heartbroken, she throws herself into supporting the war effort and heads to France, volunteering on the front line.

Encompassing the turbulence of the suffragette movement and the Great War, Rosie Goodwin’s fans will not be disappointed.

Published by Zaffre Hardback £12.99

A Winter Hope by Sheila Newberry

Life is looking good for the Hope family as they move into Number Five Kitchener Avenue in 1932. Fred’s wife, Miriam is expecting their first child and Fred has a secure job as a civil servant. Her sister Doreen 14, has a job at Woolies and welcomes the move along with her new sense of independence. But war is on the horizon and these happy carefree days can’t last.

A window on the world of the Hope family as they and they neighbours adjust to turbulent times.

A warm, cosy read, perfect for the long winter nights.

Zaffre Paperback £7.99. Also available in eBook

 

 

A Woman’s War by S Block

Great Paxford, November 1940

If you’re a fan of the TV series Home Fires and wondered what happened after the last episode you’ll find out here.

All the familiar characters appear as life in Great Paxford moves on.

As enemy planes bombard the North West of England, the members of the WI fight harder than ever to do their bit.

Teresa Lucas her reshaped her life to become the perfect wife but the arrival of a new guest threatens all she holds dear.

Laura Campbell is grieving her father. Can she find the confidence to embrace a new future?

Pat Simms plans to escape her difficult life with Bob at the end of the war but when things change at home she begins to question everything she thought she knew.

And farmer, Steph Farrow wonders whether she can live with what she has done.

Zaffre Paperback £6.99. Also available in eBook

 

Book Ideas for all the Family

My stress levels are starting to soar. I’m already fed up of the Christmas adverts and it’s only the beginning of November. It’s not the day itself that I find stressful it’s the thought of choosing gifts – will I give something to be cherished or something to be sent to the charity shop in January? Can you go wrong with a book? I hope not.

This small selection is published by Chronicle books and has eased my worries already. I don’t think the books can be categorised as ‘For Mum, Dad, boy girl’ etc. All of them are interesting in their own right, beautifully illustrated and perfect to leave on the coffee table.

Tartine –  A Classic Revisited – Elisabeth Prueitt and Chad Robertson
This beautifully rephotographed book is an updated edition of a classic for home and professional bakers―from one of the most acclaimed and inspiring bakeries in the world – Tartine in San Francisco. Elisabeth Prueitt and Chad Robertson  have updated old recipes for new tastes and added 68 new ones – including their famous morning bun (a sweet roll made with croissant dough and filled with orange-scented cinnamon sugar).

60 favourites from the original book have been revamped to suit today’s tastes which include 30 wholegrain and/or gluten free recipes.

The photographs are mouth-wateringly beautiful and if you can’t make the journey to San Francisco at least you can create the flavours for yourself.

Chronicle Books £29.00

The Hollywood Book Club by Stephen Rea

Packed full of Movie Stars – Spencer Tracy, Marilyn Monroe, Lana Turner, Marlon Brando and many more. The stars are captured either on or off set, curled up with a book,  reading to their children – or Ziegfeld Girls balancing them on their heads.

Featuring nearly 60 enchanting black and white images, lively captions about the stars and what they’re reading by Hollywood photo archivist Steven Rea. A great gift for booklovers and film fans. The perfect book to settle down with and savour.

Chronicle Books £11.99

All Hail the Queen

Twenty Women Who Ruled  – Illustrated by Jenifer Orkin Lewis, written by Shweta Jha

Twenty real life stories of women who ruled – some were rulers by birth, others by marriage but all led lives of adventure and individuality. There are women we’ve perhaps all heard of – Marie Antoinette, Queen Victoria, Elizabeth 1st, Catherine the Great – and others we may not – Hatshepsut, Pharaoh of Egypt, Zenobia, Queen of Palmyra, and Lady Six Sky, Maya Queen of Naranjo. Women of strength and power  who lived in times when women did not have equal status to men.

Beautifully illustrated by Jennifer Orkin Lewis it’s a  jewel of a book. A delight on the eye.

Chronicle Books £13.99

The Hike by Alison Farrell

A delightfully illustrated story of friendship and adventure. Three little girls and their dog set off for a hike through the woods with a map – no GPS here! The children hike through the forest and up to the top of the mountain before heading home as the sun begins to set and the stars appear.

This spirited picture book covers the best and worst of any hike: from picnics to puffing and panting, deer-sighting to detours. Featuring a glossary, a sketchbook by one of the characters, abundant labels throughout, it’s a book for budding adventurers.

Chronicle Books £12.99

Snuggle up with a Saga

Isn’t it just the perfect weather to indulge yourself and curl up on the sofa with a saga? The wind is howling away outside, rattling at the widows and what better way to spend the dark evenings than with a book to transport you to other times, other places. Here are three that might just be what you’re looking for:

 

 The Tuppenny Child by Glenda Young

‘She’s not worth more than tuppence, that child!’

Those are the words that haunt seventeen-year-old Sadie Linthorpe. Orphaned when her parents die of the Spanish Flu, Sadie is taken in by Freda McIntyre and her son Mick. Neglected and abused Sadie finds herself pregnant. Sadie is distraught when the child is forcibly taken from her at birth and sold on by the grandmother. The only clue that Sadie has to her whereabouts is that she has been taken to Ryhope. What marks the child out is a small port wine birthmark that resembles a ladybird.

And so the search for her child begins.

But when a visitor from her past appears – one who could jeopardise the life she’s beginning to build and ruin her chances of finding her beloved child for ever.

Another heart-warming saga from the author of Belle of the Backstreets. Warm-hearted characters on every page and a fine attention to period detail sweep you away with Sadie as she sets out to find her child.

Headline Paperback £6.99. Also available in ebook and audio.

The Girls from Greenway by Elizabeth Woodcraft

 Angie Smith lives in Greenway, Chelmsford with her elder sister Doreen, her mother, and her drunk, violent father. Life is dull and boring and Angie dreams of bigger and better things.

Out shopping on Christmas Eve, Angie goes into a boutique and there meets the owner, Gene Battini, a charming older man who sweeps her off her feet. Unfortunately, Gene is married – and to complicate matters, Doreen is falling for Gene too.

As life at home goes from bad to worse the girls have to decide whether their choices will force them apart – or bring them closer than ever.

An evocative and nostalgic saga set in the 60s that brings to life the music and fashion of the time. Can you remember the Mods and Rockers, the Ban the Bomb marches?  If so you’ll really enjoy this trip back in time.

Zaffre Paperback £6.99. Also available in eBook and audio

 

The Orphans of Bell Lane by Ruthie Lewis

London 1860s
When Rosa and her younger sister, Gracie are orphaned, they vow to stick together. Life is hard and people are cruel in the workhouse and Rosa does her best to protect Gracie from the dangers and bullies that confront them.

So when Grace is suddenly faced with a world without Rosa, she is forced to make difficult decisions. Can she walk away from everything she has built to protect the children Rosa has left behind?

Returning to the gang-ruled streets of south-east London, Grace is determined to build a better future for herself and for the children of Bell Lane – no matter what the cost.

The first book in the new The Ragged School series. A powerful story of triumph over adversity.

Zaffre Paperback £7.99. Also available in eBook

Living with Alzheimers – The Day Bob Got Lost by Chris Suich

Living with Alzheimers the day bob got lost

It was a glorious Autumn day. The leaves were just turning into swathes of gold and red and the sky was the brightest clearest blue. Not a cloud in the sky, great for walking and a ‘feeling good to be alive day’. Bob at this time enjoyed walking in the countryside. Indeed he had even joined the ‘Ramblers’ and joined in with a group to explore the local countryside without me, when I was at work.On this particular day I had a hair appointment which was near to  a local beauty spot, Hubbard’s Hills.
‘I’ll come with you’ he exclaimed, ‘I can walk around Hubbard’s Hills whilst you have your hair done.’
‘Well take your little Nokia so I can let you know when I’m done,’ I replied. (Thank God I’d thought of that phone!)
We drove together to the hairdressers and Bob went off in one direction and I rushed off to the hairdressers.
We arranged to meet up at the car, or ring each other whoever was finished first. It was me who rang Bob to find out where he was. I’d been waiting in the car for about half an hour  – that was just over two hours since I had left him.

‘Where are you?’ I asked him slightly irritated.
‘I’m on my way back’ he said.
‘Ok, I’m in the car waiting for you. ‘
Another 30 mins passed and I thought I’ll go and look for him coming along the road near to Hubbard’s Hills. I’ll spot him I thought, as the road is straight and I’ll easily see him coming.
No sign.
I rang him again, slightly anxious. ‘Where are you?’
‘I don’t know.’
I asked him what he meant, and if he could see any buildings, or if he could see the church spire from where he was.
‘No’ he said, ‘I can’t see anything just miles of fields.’
I knew I had to stay calm because Bob was in a panic. I told him to see if he could see anyone to ask. He explained that there was a man in a tractor in the field that he could see. He was beginning to walk through the field to get to him.After a few minutes the farmer was put on the phone to me. He told me the name of the hamlet which I didn’t really know and told me that Bob had got himself lost. He pointed him back on the road to home and I said I would drive to get him.
In hindsight I should have said keep him there and I will come to you, because Bob carried on walking and when I got to the hamlet he was nowhere in sight.
It was 6 hours later and I had driven around searching for Bob on every little road leading back to our town I could think of. I decided to go home and ring the police as it was getting dark. Panic was starting to envelop every part of me.
I had just picked up the phone when a 4×4 roared into the drive. Bob had been picked up by an immensely kind man and brought home. He was cold and muddy and very sorry for himself but none the worse for his adventure. He was able to recite his address and let the man know where he lived. (Even now his address and date of birth are imprinted on his mind).
I knew he was upset so I didn’t get cross to add to his trauma but simply said ‘ It’s alright Bob you’re home now and I’ve got some lovely warm soup and a nice warm fire.’
To the kind stranger I simply said. ‘Thank you so much, I’ve been out of my mind.’ I pressed a bottle of our best red wine into his hands and told him to have a drink on us.
It was after this incident that I found out about The Herbert Protocol, a scheme where you can fill in a form and give it to the local police with a picture in case a loved one like Bob ever goes missing again. It can save vital time in this sort of emergency.

Later I asked Bob how he had managed to get lost and he said matter of factly, ‘I forgot to turn round and head back.’

He was walking further and further away without knowing!
And that’s when I realised he wasn’t safe to go off walking in the countryside on his own.