Living with the long term effects of cancer

Cordelia GalgutI couldn’t possibly have imagined, when writing my latest book, Living with the long term effects of cancer, last year, from my dual perspective as psychologist and woman who has had breast cancer, that we would all be facing a pandemic such as this appalling Covid19 one we are now enduring. This situation is a huge challenge for so many of us; not least, it’s such a shock and everything else in our lives has taken something of a back seat, for very understandable reasons. This has included, in my case, trying to make light of my own health problems and related psychological challenges. And yet I am in the “vulnerable” category due to the long term effects of cancer that I experience. I am therefore at greater risk of experiencing a bad version of this virus. And I am realising increasingly, day by day, that these infernal long term effects are actually being heightened and worsened by the difficulties of the current situation, as are many other people’s problems. This situation is a veritable Pandora’s box of potential problems and very scary unknowns.

Why I wrote the book

I wrote my book on cancer’s long term effects because, since being diagnosed with breast cancer twice, in 2004, I had realised, over time, that side effects from the treatments I had, both physical and psychological, weren’t subsiding in the way I had been told they should. In fact, some were actually getting worse, eg. muscular skeletal problems, immune function and dread of the local recurrence and spread of cancer. However, despite the fact that other “survivors” were telling me they were in a similar state, what numbers of us have found is that there is little, if any, recognition of our suffering. It’s invisible to many, who look but do not see, who listen but do not hear. And the net result of this is that our problems are often enough belittled and we are judged for not ‘getting over’ cancer and not ‘moving on’. I know that this judgement is often unintentional, but it’s impact is still hard to bear.

Getting over cancer and moving beyond it is a tall order

The reality is that it is nigh on impossible to, for example, get over a cancer that could return or indeed, has returned. And cancer’s  treatments often enough cause long term effects, as well. So, I wanted my book to validate the suffering of those living with and beyond cancer and I also wanted it to inform those in healthcare and in the world at large about the plight of those living with cancer’s long term effects, across a range of cancers.

Long term effects are an increasing problem as more of us survive

Very scary though cancer still is, not least because it can still kill its hosts, it is increasingly becoming a chronic condition for many who live beyond their diagnosis, whether they are free of cancer or not. 1 in 2 of us will get this disease and many many of us will even survive for years, so my book effectively speaks to everyone. It’s a stark fact that we will all be affected by cancer in our lifetimes one way or another, if we haven’t already been.

My book is relevant for those with other long term conditions, too.

In this new Covid19 world, I hope my book can offer emotional support to those of us with other chronic conditions too and even to those of us struggling emotionally with this horrible new reality in one way or another. The support and strategies I offer are transferable to many situations and many other conditions, too.

An interesting podcast featuring me: https://twitter.com/JKPBooks/status/1247951884272443392

The Psychological Impact of Breast Cancer: A Psychologist’s Insight as a Patient is available here.

Stay In Work Out: Rachael Attard Helps You Stay Fit and Active At Home

Rachael Attard , PT, workouts Australian PT Rachael Attard has shared a free 7-day cardio workout on her website to help us keep active and beat self-isolation blues.

Following government coronavirus advice, people around the world have been urged to stay home but that doesn’t mean you need to miss out on a workout.

Women’s fitness expert and personal trainer Rachael Attard is giving everyone the opportunity to get moving and take part in her cardio sessions without having to part with money, in a bid to keep the world active while at home and help cure self-isolation blues.

Rachael Attard has launched ‘Quarantine Cardio’, a seven-day cardio workout plan that you can do from your home. You can access the workouts for free via Attard’s website here.

The workouts are appropriate for all fitness levels and abilities, require minimal equipment and most importantly can be done without leaving the house. The videos can be done alone or you can encourage those you’re quarantined with to get involved, so grab your mom/housemate/bff if applicable. The videos range from brief one minute tutorials to full length follow at home workouts.

Get ready to get your heart racing, it’s time to take advantage of the free workouts led by Attard or her Mom (a cardio instructor with over 25 years experience)!

Day 1: At Home Cardio Blast

https://www.youtube.com/watch?v=HPc71ec6IHM

This is a great alternative workout to power walking or running. Attard is joined by her mom in this workout so if you’re self-isolating with others why not get them involved too.

This workout is a full length, follow at home workout and will take around thirty minutes.

Day 2: Full Body Workout

https://www.youtube.com/watch?v=T-B8IOB7GvE

A full-body resistance workout that won’t leave you feeling exhausted. It’s low impact and suitable for all fitness levels.

This is a one minute workout demo. Attard demonstrates how to properly execute each exercise within the comfort of your own home.

Day 3: Core Workout

https://www.youtube.com/watch?v=eVZVYRz8AlU

A super quick ab workout that can be done anywhere. If you have sliding discs, dig them out, if not grab some small towels or paper plates.

This is a one minute workout demo. Attard demonstrates how to properly execute each exercise within the comfort of your own home.

Day 4: Couch Booty Workout

https://www.youtube.com/watch?v=iYV5iwmuCPk

It’s time to work on your glutes and legs. To do this workout, stay in your living room as you’ll need to use the couch.

This is a one minute workout demo. Attard demonstrates how to properly execute each exercise within the comfort of your own home.

Day 5: Rest and Replenish

Day 5: Rest and Replenish

As important as it is to move your body, it’s also important to give your body time off to rest and recover.

Pro tip: Make sure you sleep on the right bed. A hybrid mattress that comes with an additional layer to relieve pressure from the most sensitive areas can help your body recover overnight

Day 6: Boxing Workout

https://www.youtube.com/watch?v=Hb6ik1ivQHo

Attard is once again joined by her mom for a boxing workout that will help tone your core and upper body.

This workout is a full length, follow at home workout and will take around 40 minutes.

Day 7: Full Body Burn

https://www.youtube.com/watch?v=UP8Bm0BQ4Ro

To finish off this 7-day plan, Attard has prepared another low to moderate intensity routine that will work your whole body.

This workout is a full length, follow at home workout and take a little over thirty minutes.

 

CHARITY GETTING DISABLED KIDS DANCING DURING LOCKDOWN

  • Charity Flamingo Chicks is pioneering inclusive dance classes for disabled children
  • Virtual classes are designed not only for fun and fitness, but also to tackle loneliness and isolation
  • Their dance classes benefit 3,000 children each year

UK charity for disabled children has produced a one of a kind series of virtual dance classes for children of all abilities, but especially aimed at those with conditions like autism, cerebral palsy, profound and multiple learning disabilities and physical impairments. Pirouetting in the footsteps of Joe Wicks, UK charity Flamingo Chicks is launching Makaton-signed and subtitled online dance classes that disabled children can do with their siblings and carers.

These unique online classes are suitable for children with a wide variety of needs, including those with complex medical needs or life limiting conditions as well as children with learning disabilities, autism, physical impairments, and children without additional needs. As in all Flamingo Chicks classes, adaptations are provided throughout, including ways parents and carers can support children with limited mobility, and ways to translate different ballet and dance movements.

Filmed using green screens with animated backgrounds, the classes not only get kids moving but immerse children in a magical world of storytelling, characterization, and music and come complete with Makaton for further accessibility.

Flamingo Chicks have even got volunteer celebrities on board to help young minds keep active, alert and engaged. These celebs have written new stories with the themes of dance and inclusion that will be illustrated and read aloud by a famous face. First up is Julie Hesmondhalgh (Coronation Street’s Hayley Cropper) reading ‘Ozi Seven Legs’!

Even in normal circumstances, life with a disabled child can be an isolating experience – a study revealed that, before the Coronavirus pandemic, two thirds (65%) of parents already reported feelings of isolation. Limited social interaction can be due to work, lack of time and money to do activities other families take for granted, fear of people’s reactions to their child.

However, the lockdown is creating new challenges for families with a disabled child. The lack of  routine, the uncertainty and the added anxiety parents are experiencing about their disabled children’s vulnerability means social isolation is an even greater challenge. Many kids will no longer be getting their usual visits from their care teams, such as their physiotherapist or mental health professionals, and as a result may be showing extreme anxiety or behaviour changes.

The virtual classes are one of a number of resources created by the charity that also campaigns for a fair future for disabled children and their families and provides a peer support network for parents and carers.

 

Not only will they encourage dance through their online classes – the first with a SPACE theme filmed using animated green-screen technology and signed with Makaton – but the charity will also offer activities for little scientists and crafters, guided meditation and relaxation videos for parents/carers, ‘smile calls’ via video chat to provide those much needed boosts and a variety of other online resources.

 

FC at home

inclusive dance lessons, disability, disabled, dance, lessons

Coronavirus Is Tough On All of Us But Together We Will Pull Through

Hey, how are you doing? Not great? I do not blame you. These are scary times. Every day is seems unbelievable that our lives have changed so much, and that so many have lost their lives. The NHS workers, delivery drivers, bin men and grocery workers are our new heroes. It is a new world and frivolous things do not mean much in a world like this.

I am seeing a lot of stuff on social media and in the press about how staying at home is easy so I just want to write this, not for any idiots who are going out and not listening to the Government guidelines, but for the rest of us: none of this is easy. It is okay to not be okay.

What is going on at the moment is horrendous and there is so much we do not know. If you are struggling then do not feel bad. I read a story about a 43-year-old woman who had what she thought was a cold and a fever for two days. Her husband called an ambulance when she collapsed. She died before the paramedics even arrived and her husband was in shock. They had a 13-year-old son.

A lot of people are dying every day and there are mass graves in New York. Pregnant women are having a tough time and some women who wanted to get pregnant say they have lost their last chance. This is all scary and unknown.

So many people have lost jobs and money. Millions of people have gone hungry. People are worried about the roof over their heads and the future. There is so much suffering at the moment. It is impossible to not be affected by this. So we must all go forward together because never before have we been more in this together. This is not easy but we have each other and we can all do whatever we can to put goodness and positivity into the world.

Get in touch with us if you want to talk or share your story. If you want to learn more about the Pandemic, or Pandemics in general, then I recommend Pandemic, the documentary series on Netflix, Pandemic: Covid-19 on NowTv.com and the movie Contagion which is also on Netflix.com.

 

The Folio Society’s Top 10 Books for Social Distancing

As the UK continues in this unprecedented period of social distancing, more and more people are looking for productive ways to spend their time at home. On the top of many people’s lists, no doubt, is reading new books that they may not have gotten around to. Reading has many benefits and has been proven to help reduce stress and boost wellbeing.

 

To help book-loving Brits find their next read, Tom Walker, Publishing Director at The Folio Society, who, for over 70 years, has been publishing beautifully illustrated editions of the world’s greatest fiction books as well as thoroughly picture-researched non-fiction books, has pulled together his top 10 picks of books to read whilst in self-isolation.

 

The Tenant of Wildfell Hall

Being stuck at home and only allowed out to go to the shops seems a good time to read about feminism, and this is arguably the first feminist novel. Wildly surprising in its modern sensibility, Brontë rages against a society that held women shackled to men and the home.

 

The Little Prince

I can’t help thinking of how the Little prince would respond to our world right now. An enigmatic, compassionate but sad creature of the stars, I sometimes imagine the weight of his judgement on us all for the job we’re doing of keeping our little planet safe.

 

The World Turned Upside Down

The English Civil War of the 1640s shook the nation to its core, and in the process out scattered a legion of radical ideas and philosophies which have formed the national identity ever since. One wonders how our current upheaval will reshape us.

 

Dr Zhivago

What better time to re-engage with this great Russian epic? The recent translation by Boris Pasternak’s nephew returns the lyricism and colour to this beautiful novel of love, war and the Russian soul.

 

Moby-Dick

What an opportunity, if you never have, to read this bulking leviathan of a novel. From the first pages in Nantucket, where Ishmael befriends trusty Queequeg, Melville loops his crazed tale of ambition and revenge, culminating in scenes of terror on the high seas.

 

His Dark Materials

Pullman might be the purest storyteller of our times, and His Dark Materials is his masterpiece: a truly addictive adventure story which leads us into other worlds.
Handmaid’s Tale

Turning to Margaret Atwood in times of trouble is always a good decision. Prophetic or not she is wise and compassionate, and laces those qualities with a killer wit.

 

Maigret

If all else fails, pick up a Maigret. With plots as light as a feather and a stripped-down style, Simenon’s thrillers are beautifully evocative of the underground tensions of a mid-century Paris.

 

Persuasion

It’s always a good time to re-read Austen, to get lost in that luscious prose and arch wit. Persuasion is her last-completed, and perhaps her most mature novel, and a joy to revisit.

 

I am Legend

In the current circumstances this is not a book for the faint-hearted: Matheson’s vision of a post pandemic future doesn’t contain many people, and even fewer who are not zombie-vampires, but there is a glimmer of hope at its end…

 

Mirror & The Light

My eleventh choice is not yet available as a Folio Society edition, but I do hope that it will be one day. This is my current quarantine reading. A nine-hundred-page masterwork of astonishing delicacy and intelligence which draws one back through the eyes of Cromwell to a Tudor London infested with plague and political instability.

 

 

Great Tasting Water On The Go: ZeroWater Portable

I love the ZeroWater filter so I was excited to see they now do a water bottle. The portable bottle has the all-powerful filter that filters out 95% of nasties. It is a good-looking bottle and is great for the environment. Highly recommended.

Research suggests 7.7 billion plastic water bottles are used each year, that’s on average 150 plastic bottles every year per person according to Water UK. Help cut down your own personal plastic footprint by making a small yet active change to the way you keep hydrated by carrying a reusable water bottle at all times, not only reducing your own use of plastic but also saving you money in the long run too.

zerowater, portable, water bottle,

Enjoy pure-tasting water anywhere you go! Offering 0.8L capacity the ZeroWater Portable combines all the top-performing filtration technology of the standard ZeroWater filtration jug but in a stylish, convenient cup complete with textured easy grip lid. So you can enjoy great tasting water out of your tap whether you’re at home, work or the gym, a resounding success for you and the environment.

The ZeroWater Portable uses the iconic patented ZeroWater filtration system, which combines FIVE sophisticated technologies that work together to remove virtually all dissolved solids from your water.  The only pour-through filter pitcher on the market that’s certified by the NSF to reduce lead.

What Does The ZeroWater Remove?

According to government figures 8.5 billion plastic straws are used each year. Which is why reusable straws are a great alternative and the ZeroWater Portable comes with just that, offering durability and a hard wearing design that seamlessly reflects the aesthetic of the portable cup. Another fantastic example of how the ZeroWater Portable is such a great alternative to single use plastic bottles.

How Long Will The Filter Last?

On an average water reading of 200 ppm you get 19 litres of filtered water from each ZeroWater Portable filter but please note it is dependent on the initial quality of your unfiltered tap water and daily consumption as the amount of dissolved solids in tap water varies across the UK. Each of the ZeroWater Portable filters employ a next-generation filter replacement technology. A “Colour Change” window which indicates when you need to replace your filter for added convenience. Once the replacement filter has then been fitted the other can be recycled at most Household Waste & Recycling Centres in the UK.

The ZeroWater Portable is available to buy online for £14.99 from ZeroWater, replacement filters (2 Pack), £14.99 from ZeroWater.

SISTER SCRIBES GUEST: STEPH HAXTON ON MOVING THE MUSE

Steph Haxton was one of the first local writers I met when I moved to Cornwall. Historian turned author (or gamekeeper turned poacher, as she’d have it), her research is meticulous and her wit legendary. Unfortunately for me she’s now moved to Scotland, but how would the sometimes elusive Mrs Muse take to the change?

 

Mrs Muse, plugging a new novel set in Scotland, by June should have been sitting on the doorstep of our new home. But I’d had not a peep for weeks. She’d showed briefly at Holyrood Palace; she’s a sucker for anything royal. But after a quick tap on the shoulder, she scarpered again.

A month later I decided to head up the M90 to Innerpeffray Library, a place highly recommended by a fellow bibliophile. With an overview of where I was headed, I let the Sat Nav tell guide me. My relationship with it being troubled, when it directed me off the dual carriageway not far outside Perth, I was immediately suspicious.

‘Turn right to Roman Road.’ It didn’t look likely, was signposted something else.

But round two sharp bends, there it was! Only a bloomin’ Roman road; straight, classic width, ditches either side bordered by beautiful woodland. Wow!

I had to stop a few miles on, when the trees dropped away.  On a ridgeway, I faced a breath-taking view over the Strathearn. Thirty seconds later, four police motorcyclists in formation swept past, easily doing 50mph. Incongruous on a rural lane, they were clearly enjoying a Roman road too!

Before long the brown sign for Innerpeffray Library sent me down a potholed track. A turf path though trees, a red squirrel bouncing ahead of me, led me past ancient yews surrounding a tiny chapel where a rash of goose-bumps swept me from head to toe. Around another corner stood the Library.

‘Hello! You took your time!’ said my precocious afflatus.

Beautiful books and friendly faces greeted me. A lovely volunteer explained the Roman origins of the site and the library’s history. I took a sharp intake of breath: 1680, a date central to my next novel. I had been looking for somewhere to ‘place’ the female protagonist. Even if Mrs Muse hadn’t been elbowing me in the ribs, I’d have known – this was it!

The weird coincidences continued: the gentleman giving me a tour of the reading room originally came from the Roseland. That might account for his choice of pages in Camden’s ‘Britannica’. But his finger, pointing straight at Pendennis, the castle at the core of my books? No. THAT was extraordinary. There was more.

The exhibition in the display cases was on ‘Emigration’. A member of the Library had researched and highlighted a name amongst the many hundreds in the borrowers’ registers.  Haxton. Ours is not a common surname anywhere so, of all the names in Perthshire, the odds of that had to be pretty long.

I was still shaking my head in disbelief when a charming couple came in. We were introduced. Roman re-enactors, they live about 500 yards from our new address. When they shared an experience that Mrs Muse began applauding with gusto, I beat a retreat on ‘overload’!

Deliberately taking a different road back to the A9, I found myself approaching the junction that I’d taken so warily almost exactly two hours earlier, but from the opposite direction.

There, sweeping across the carriageway ahead and disappearing into the trees, were four police motorcyclists. The same ones? I’ve no idea.

All I could hear was Mrs Muse yelling, ‘They aren’t police riders! They’re the ghosts of Romans, horsemen, and they continually ride the same route on one day every hundred years. They’ve just updated their steeds …’

I don’t care where she’s been, but Mrs Muse is definitely back!

 

 

 

Love In The Time of Corona monologues – TONIGHT

The first of HighTide’s Love In The Time of Corona monologues available TONIGHT from 5pm.

From 5pm tonight you’ll be able to watch Jade Anouka (Last Christmas) perform Aisha Zia’s (No Guts No Heart No Glory) monologue and Katie Lyons (Manhunt) present Olivier Award nominee Morgan Lloyd Malcom’s work.

These two monologues form part of HighTide’s Love In The Time of Corona which will be available free of charge on HighTide’s YouTube and Facebook channels. Filmed and edited through support from HighTide’s sponsor Lansons, one of the world’s leading reputation management companies, these monologues will be available for four weeks from release. Zia’s piece explores the chaos of modern urban life and the feeling of apocalypse which loomed even before the pandemic, while Morgan Lloyd Malcolm looks at being a new mum trapped at home with children, and how anyone can be enough at a time like this. Three more monologues will be shared in the coming month; Sophie Melville (Bang) will take on Ben Weatherill’s (Jellyfish) piece which explores intergenerational relationships and reaching out with love to older relatives who are alone at this time.

BAFTA nominee Dawn King’s monologue about living a social media life along with a real one, will be presented by Shobna Gulati (Coronation Street). The spoken word artist Debris Stevenson (Poet In Da Corner) will perform her own piece. All five of the writers of Love In The Time of Corona are currently developing full-length plays for Suba Das’s inaugural HighTide Festival in 2021.

The Love In The Time of Corona monologues are created as part of HighTide’s Lighthouse Programme of free, brand new projects and support for artists, audiences and communities, specifically created to bring light in the weeks ahead.

The scripts will be available royalty free for actors and directors to make their own digital versions to be showcased on HighTide’s social media channels. Morgan Lloyd Malcolm comments, It’s been lovely to be a part of HighTide’s Lighthouse Programme.

In a time where many of us are unsure about what the future holds, to be able to write and send some words out into the world has felt like a lifeline. It’s been hard to create amongst the panic of what’s going on but sitting quietly for a few hours and thinking about making a small piece of work for a brilliant actor has been a proper privilege and treat. I hope what we’ve all made gives people a few moments of respite and joy.

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